Parents of children with diabetes

Antonio, to start controlling the values, I prefer to start at night and then control what happens for the day.
The night is simpler because the child moves less and once medium -colored you already have a third of the day well adjusted.

How is that you used the basal as bolus?I have not understood ...

Do you use temporal basals?In the case of hiccups, I leave the basal at 0 for half an hour ... In case of exercise I leave it to 50% or 70% for which the year calculate;So when the temporary basal is over the pump returns alone to the programmed values.

As for the strips, the Spanish Diabetes society recommends: Link ... _tos.pdf
That is, in case of insulin pump, what is recommended are between 4 and 10 daily controls.
So less than 10 daily reactive strips should not prescribe your endocrine.
If you have less, print the consensus, take it and read it ... but pay attention, complaint in writing attaching the consensus.

The night in children is usually very variable, since their rhythm is also very changing, at least that is my case and that of some children I know ... Keep in mind that the physical activity developed in during the day influences several hoursAfter having done it, so if the day has been very movidito, it is possible that at night I tend to be low, unless it has been crammed with HC, s, that then it is likely that it of some rush ....
As Owash says, temporary basal ones are great for those situations in which it does not go well, or when an activity is expected both greater and lower .... it is one of the valuable bomb options ...
How do you go back the hypos, or the figures those that are at the limit?I ask you why our endo is very meticulWhat to do is: Give fast hydrates (juice, glucosport, sugar, what is usually), wait 10-12 minutes, to measure again, if it has not traced, repeat the operation, and if it has been traced to give 1/2or 1 ration of HC, s slow (cookie, e.g.) to maintain glycemia .... In addition to that it can be for a basal as Owash says, 0 for 1/2 time until they go back and if the child will continueMoving, putting the temporary basal for the time with the exercise at 50% or 60% ... as with everything, each is a world and you have to try.
As I say, it is an advantage to have the bomb for these situations, it would be impossible if it enlighten.
With respect to the strips, we have no problem, the endo has signed us 250 that are the ones we use per month, but if we need more, they give us more ... so to pay, nothing.It is what we lacked, nor that we did the controls for pure taste .... By the way, where do you know? Is it the only specialist of your hospital?

Greetings

Good afternoon to both of us, we have had a decrease of 48 ... Ufff, that bad milk enters one, the descent has been because it has not wanted to eat almost anything (1.98 rations) and we did not have a calculation for Tampoca Comidad.... then much insulin, it has not been maintained and descended.
Owash, the basal of the night we do not have very bad, the problem is that we never arrived well at night, at 11:30, when you go to sleep it is not in values, or very high or very low, having to have toCorrect giving food or glycosport we are already out of control all night, for us it is essential that you go to bed well and that only achieves it if the post is acceptable, having bad values ​​in the post, pos we cannot control the night,That is why I thank Velia again for his council of the square bolus.
When I say we used the basal as bolus I mean that our basal were.0.075 from 24.00 to 8 at night, 0.025 from 6 to 13:00, 0.30 from 2:00 p.m. to 4:00 p.m., 0.025 from 5:00 p.m. to 7:00 p.m..I think that 0.30 was very high for our child and we have dropped it to 0.20 but because we are putting the square bolus, we really had very high basal for it at that time and now we are correcting.Endo says that there are many basal sections but we can't think of anything else.
The reactive strips will be very useful to tell my head and endo doctor ... first kindly and then ... I hope they pay attention.It is not a bad end, he put the bomb and we are very grateful, but the disease is very difficult and requires many knowledge.Velia, I am very liao with the little one, when I can answer you, thank you.

The hypos we go back as Velia says, but sometimes we only give it fast and not slow sugars, it is very bad diningMany controls, but we have no solution. We can put basal 0% but this only results if it is in 100-120, below it is going too slow and we usually have down, only at night it results and we do not have to wake it up with values ​​about values ​​about values100, if it works, but not in strong drop.
The sport, uncontrollable, does what he wants, is two and a half years and runs when he wants, it costs a lotNothing, but their basal are very low (I have already put them to Owash).
We are from Granada, or Grana for friends, but we normally live in Almeria, which is where they treat us.It is a good endocrine team but this is very fucking.

I understand that you don't put Bolus according to what he eats, right?
You only have the basal but not the bolus for each carbohydrate unit.

That is, you have fixed amounts of food and basal guidelines of:
0.075 from 24.00 to 8 at night,
0.025 from 6 to 13:00,
0.30 from 2:00 p.m. to 4:00 p.m.
0.025 from 5:00 p.m. to 7:00 p.m.
0.30 from 20:00 to 23:00.

You do not add anything more insulin, any other bolus.

If that is like this: shock ::-I don't understand why your endo has scheduOnly with basal:-/ Because it will happen thousands of times that I eat badly, you don't like food, it's bad ... it doesn't leave just space for unforeseen

0.30 Basal already seems to me a lot of 2 years ... I have a hourly stretch of 0.80
The basal sections are not many, I also have 5 different, they are the ones I need ... as if it is necessary to do 24

The basal sections are the ones we have used (the ones you write), we also count on carbohydrates and yes, we put insulin in the meals, ratio: 0.32 at night, tomorrow: 0.50 and noon: 0.42 per ration.In addition to the basal, the problem is that we always had a climb at 5:00 p.m. and 23:00 that we did not know how0:20 in the sections of 14:00 and 20:00 from the previous 0.30.In return, to avoid the climb we are using a square bolus that we did not use two hours around 30% of the total bolus.It is true, perhaps we have to continue going down the basal below 0.20 but we are starting the adjustments and so many changes of blows give us a little fear.I will tell you that the section ends at the moment 0.20 and we put square bolus when you eat, as you say to leave space for unforeseen events, still possible, it is high, today it has not eaten much at noon and we have had descendand average of 48, then the bolus and the basal were excessive when he does not eat.
Our endo has recommended that we make the less basal sections the better (around 4) I don't understand it but it is what he says, he says that the organism does not have so many differences and that there are not so many changes in the organism ... notI know, but we are trying to adjust to that idea.

I do not understand the theory of your endo of "how much less basal sections the better": shock :, I say that each one will program what is better for their lifestyle, I also have 5 different sections programmed ...... And ifI would need more would have more ... What's wrong with that?someone explain to me ....: Shock:
What seems to me a lot is 0.30 basal for a child so small that I imagine moves a lot, I am adult and surely I move much less I have that basal for much of the day, all morning and from 17, 30 at 4 in the morning.

Hello,
It gives me the feeling that these two sections of 0.3 corresponds to the post of the meals, I suppose that they should be covered with the Bolus (square) and reduce the basal, that way you will not play it when you do not want to eat the little one.Have you raised the continuous meter?It is very expensive, but the quality of life you earn ..., even if it is a season to adjust basal.I have no idea whether or not it will be recommended for such young children, but I think it would be wonderful that he will notify you with time of the hypos and if he sleeps with you, some control that another at night could suppress.

Antonio, when you go back to the endo ask the why of those high basements of 0.30 in those 2 specific sections.
Maybe there is any explanation, but I don't see it.
It is multiplying by 12 the insulin that carries the rest of the day ... It seems excessive to see that you put the bolus corresponding to each ration.

Basal insulin is more than controlling the organism ... we also use it to prevent and overcome hypos, prevent and trace hypers ... Your endo is a bit simplistic in this explanation, I think.
At least, I get 4 sections: tomorrow, afternoon, night and early morning.From there each one refines as much as you can ...

Tica, we have considered the continuous meter several times but it gives us something "to click" more, we see it so tiny ... In the end we throw ourselves back, more than the economic issue (we would ask for help from grandparents) what gives us somethingIt is another puncture.Likewise, I think that medical authorization or something is needed and I don't know if I would convince endo.

Owash, I am very surprised that the basal ones tell you the endo, we guided us well above the rest has been burscaros life and try, try, try to avoid ups or down and make a mistake and make mistakes ...The basal of 0.3 was decided by seeing that in general the sugar would undergo at that time, we would have liked to have more help but that is the truth.
On the simplistic explanation I think that sometimes they simplify thinking that one has no ability to understand (I imagine that that would have happened to some also on occasion) and that they are endocrine doctors and that gives them a kind of authority that they do not haveto explain things, I would say that they think so because I say it that for that I am the doctor ... correct myself but it has happened to you on more than one occasion .. or to take away from the environment that there are people waiting and theCheck is full and I don't have any more time .... Maybe it's too hard but a bit is what I think happens.

In our case the endocrine is absolutely on top of any patient and especially if it has a bomb.If the hem is bad, visit every month with calendars of everything, continuous meter, change of guidelines, etc ... it is supposed to help you calculate the insulin/ration ratios, sensitivity index, Bolus Wizard programming ..But it is Ciecto, that when we started with the bomb, we did it at the sameAll endocrine are willing to so dedication ...
Fortunately, today there is a lot of information, many people have a bomb and that can help many users who are in your same situation.
We have 6 stretches of basal, and as they say in the posts, as if you have to take 15, that's what the option is, right?
Do you have calculated the sensitivity index and the ratios?It is very important because it will help you in the calculation of Bolus and the corrections.
Antonio, I send you private my phone in case you want to call me.

I leave this a link on the treatment with continuous infusion of insulin in the pediatric age, prepared by the diabetological team of Ramón y Cajal.

I have been taking a look .... it is fine, although the objectives that marks seem too adjusted to me in the case of children.In any case, all this material is fine to have it by hand, especially at the beginning of pump therapy.

Navigating the network I have found this link that contains a school agenda for children and adolescents.It is prepared by Elizabeth Déniz Suárez, and reviewed by Dr. Raquel Barrio Castellanos, who is a pediatric endocrinologist at Ramón y Cajal hospital in Madrid.
Let's see if it serves you.

...

Velia I have been reading the information you have sent, quite useful, next year goes to school in September, we'll see, it's a challenge.There are with the basal and bowling settings, fighting, we have improved a lot but rise and corrections escape, we will see.Within the information you have sent, I have found another book of a mother that is treated by Dr. Barrios, which is something like living with diabetes and not for diabetes (in Velia's last link) and comments that for the fingers youThey will give with aloe vera gel ... well, I have gone to parapharmacy and bought it, but a question arises (I don't know if someone uses it and can solve it) is whether it alters the measurements, we wash your handsBut there are so many tests that sometimes we give with a napkin with water and I don't know whether to use this gel will change the measurements, I also think if we put it at night if the test result will change.

Hello,
It is not the site for presentations, but as I have been reading this post, I wanted to leave my signs here.
I have been diabetics for 26 years, and the truth is that I get along.I have three wonderful children, that with my diabetes my effort has cost me !!
On April 6, my two -year -old son, debut.
I find a real cassy, ​​and I am already a user of another forum, and there people told me to pass through here, that there were children with bomb and with continuous meters and very expert people!
And the truth as little that I have read like this has seemed.
I hope to find here, answers, although for now my son's values ​​are without ton or are, and I think that the guidelines that gave us yesterday to leave the hospital are not approximate ... buff
So it costs me a lot
Vuetsros children have symptoms?He has done three hypos in these 14 days, and none with symptoms.Today I was 39 and so richly.I have been asymptomatic hypoglycemia hypoglycemia for many years, but they told me that it was because my body after so many years had become accustomed, but he?He has just debuted, or so we believe.His hemo was 7.4.This creates a lot of anxiety.
Velia, Pirkiss (Inma) sends you a greeting.I advise your advice !!
hehe
A hug

Antonio, is very good about Aloe Vera, we have a natural plant.TB.It is worth a good moisturizer and regenerating cream ... you apply and clean the fingers before control, because having clean hands is important, although I do not know if a cream will affect so much, and then you apply a little again ...Years ago in another forum I also read that spending a soft nail brush through my fingers as a massage and then applying the cream also helped a lot ..

Welcome, van !!!I hope we can help you with something.On the mood only the time that will help you understand your child's reactions, and how hydrates, insulin, exercise in it, will make you more relieved.I assure you that it is achieved, so mood.
Where are you from? Of course the insulin pump is considered the best treatment for the control of diabetes and more when we are talking about children, the issue is that in many places they do not want to hear about the subject, and more recently debuted... yes, you have an ace in the sleeve, and it is your experience as a diabetic.Do you have a bomb?If so, that would be another point in your favor.
My daughter debuted with 5 years, and left the hospital with the horrible pre -chef and actrapid for noon, it was a horrible time, even with 2 severe hypos.Some 25 without symptoms of any kind and especially with tremendous ups and downs.It was frustrating to do a control, I never knew how much I could have.So I suppose the principles in some children are like that.Fortunately we quickly move on to Lantus and then to a bomb.What insulin have been prescribed?To notice the symptoms I think it is because it is very small.You will have to observe him a lot, sometimes the dark circles are pronounced, or they get pale, or sweat, or are hungry .... my friend Monti's son, who debuted with 2 years too, with 3 or 4 years as he said thatThe gut hurt already knew that it was hypoglycemic .... is that being so tiny ...
Well, with respect to the pump and continuous meter, ask what you want.A lot of moms have passed here, almost all with children with a bomb, and a few also with a continuous meter, which although they do not write it is possible that they read, to see if we can all put a hand.
Give a hug to Pirkiss from me, Joooo, I lost track of him.We've ever commented by Alea and I ... his daughter will be a woman already.How are they?
I send you my tfno.By private, in case you feel like talking.

Kisses to the little one and a hug and a lot of encouragement to you.

Thanks Velia, what a good reception.
When I speak with prikis, I say.Your girl, a little woman with a boyfriend a couple of years ago !!
We are from Lerida.Here pumps for adult there is problem, and more if you want to get pregnant, so it was when I proposed it in 2008, and I said that yes !!
The problem is that children do not put, and they have to refer us to BCN, which I already like but there is a porblema, if I spend something to my child, I will not go to 1:30 on the way to the hospital, and Claor ifThe thing here, when I arrive with the child with the bomb, do not even know what to do ... so to see if the endocrine talks to the Endors of Barcelona, ​​and with the help of the Endocrine Dia Hospital, where they take me,We can put it on, but this will take time.
Treatment carries the Levemir tomorrow and Night and Novorapid before meals.
I do not understand well, it is supposed that the Levemir takes effect at 12 hours?It seems to me that the first two hours do not take effect and when it has been effect for 8-10 hours.
It is a roll because we put 1 unit for dinner and at two hours 248, at 00:00 it is 331, we put a novorapid unit and at 3 in the morning it was in 43 !!
Before dinner today was 167, the only acceptable value of today, I say we put one and that eats a less ration, because I fuck ... you are now 276 ... what do I do if it is more than 300 les lesskewer one and do I give milk ??
Regarding the continuous meter, I have read that it is not the panacea, but well calibrated, is it very expensive to buy and keep it?
Looking at what you eponeis, the truth is that I see difficult now for now to be able to calibrate well, but knowledge does not take place.
Thank you for the phone, I do not assure you whether I will call you or not, I already have two other telephones from other moms willing to help, but the truth that with three beasts at home, calling is as impossible mission, and more now ....
Mcuhas thanks

Hello, they go ... I would not hesitate to put the bomb, even if it were in Barcelona .... What could happen to the child so you had to move there? ... After all, you must perfectly control the handling of the handling ofThe bomb ... if it breaks or something like that, Medtronic sends you to your house with messenger ... if you get bad and have to hospitalize, surely you will be the one who takes control of your diabetes ... so notYou doubt it, put the bomb.
With respect to the doses, UFFF, how difficult ... the beginning of the effect of the levemir is 1 to 2 hours, then theoretically has a flat effect, that together with the alba effect (I do not know if the little one has it), make it seem that those 2 or 3 hours that you say ... the corrections do not take effect, maybe it is a barbarity what I say, but it would not be possible to put them with syringe?Thus you control the half units, it is that it seems to me that 1 correction unit for such a small child is a lot ... and with the meals, I would play with the portions ... If with a unit you fall very short, you fall very short,You may need 1 and a half, I would put 2 and give you more to eat, after all it will be a transitory measure and no matter how little, I suppose.Years ago there was talk that in other countries fast insulin feathers were marketed that went from 1/2 in 1/2 unit.I do not think they are still marketed in Spain, but I will take a look at San Google, to see what I find.
The continuous meter is using very young children of the forum (Bueeeeeno, not so small ... how time passes) ... the son of mani05, the son of Mornita, the son of Maruchi, I do not know if in the end heThey put Santesteban's son ... They were all very tiny when they started using it and I think they were very good.
I don't know exactly the price of Medtronic, but I believe that the transmitter has been costing 800 to 1000 euros, with a duration of a year or so to full performance .... then separate the sensors, which I do not know if they were around the50-60 euros each, with a duration of 6 days.
And on the other hand is the Dexcom, whose sensors last a few more days.
There are some open threads about this topic in the pump and new devices section ...
In any case, my goal would be first to put the bomb ...
I do not know if I leave something in the inkwell ... Ahhh, that Jo, I already take care of the work you must have with 3 children and with this "bit added", so he doses, that this is exhausting.
Greetings.

They go, that correction seems to me a barbarity at least for my son, we unns bomb because it is so little the amounts that you have to put that it is almost impossible with syringe, each child is different but mine was also 340 also at night (we wereBy there, I enjoy a lot, but the values ​​are disgusting) and we corrected with half unity (0.50 units), it was fine, enough and almost more, if it serves you, we have put 0.7 and 0.8 with500 and High and it has been enough, one one to my son causes a huge low safety, be careful with corrections.
Likewise, you do not part of the slow insulin, we were tall at twelve hours and bass for 3, 4 or 5 in the morning (or before) so we also change to the bomb.
Exercise, food, do not think that you will be able to maintain the values ​​similar to an adult, a three hundred is high but do not obsess and less at the beginning.I use bomb and I do many controls, more than Velia, around 10-12 daily, it sounds to barbarity but I am not yet able to control this disease, the day is unusual that does not win at least once (or down or rise), in short, to us, the controls give us a lot of peace of mind even if they exhaust us, I hope to reduce them but with the best tight basal and over time