I am desperate for my son.How are the advances, please?

@Lowcarb, well, you already have everything controlled, the exercise does not have slavery either, I remember that they sent us to exercise after eating, until I realized that going up the quick I could stay playing at home quietly.
Adapt diabetes to your life as much as you can, not vice versa.
Much encouragement and take the medication, which I also had to take it a long time and helped me a lot
I was the same as you, but I calmed down when I realized that you could control and avoid complications.You will know better treatments that facilitate everything.

@Lowcarb Have you looked at your city's diabetes association?In Madrid they organize many events for children, hiking with parents, cultural routes, support days, education, recipes, summer camps, etc.
They may help you mostly to cope with it.

The child normalizes him immediately;Parents suffer more.

@Ruthbia I live in a town in the province of Barcelona, ​​many kilometers from the capital and here there are no activities :(

@Lowcarb, in the villages there is more peace of mind and more time for everything.Having peace of mind is also very important.

@Lowcarb forgive, I thought I was 8, no 6, that's why I told you to try next year.

Regarding the crazy in adolescence ... I would tell you my adolescence and especially my youth but they still throw me out of the hahahaha forum.With this I am not saying that it has to be outdated but having the sensor and measuring you can have your nights to go out, drink, etc. and there will be no problem.
I have traveled, I have gone to festivals, to concerts, I have been sleepless nights and even days without hardly eating and all this without sensors and without the insulins that are now.
I insist, I am not saying that this is an example of anything but that it will have its years of lack of control and gap, this is considered discounted.
Anyway, my advice is that of the other day, focus as much as possible in the day to day and above all, try to be well and calm.
All the best.

Thank you very much @nigiri and you all give me hope.
The problem is not only my son's diabetes, it is my emotional state.
The diabetes is taking it more or less well, the current "problem" the child is not stabilized with fixed insulin doses, but that it needs rapid variations almost every 2 weeks, in principle I believe that by environmental factors such as heat orMoisture, also the exercise has changed because there is no school and are things that bother me not being able to modify (although I manage to stabilize blood glucose in about 48 hours, it changes again in about 2 weeks).
The slow I have also had to raise it a half unit 3 times this summer, summer began to 3 units at night and today it has 4.5 units ...

Well, but when any external factor changes (physical activity, food or even climate) you have to make touch -ups.The real problem that I see is that your child is still very small and is not able to carry the disease alone.That is why the best thing is that you all learn, but above all, so that it first understands the symptoms (fundamentally hypoglycemia, which is the really dangerous of this disease) and, with more use of reason and some years of experience, to dominate it.This can distress you, but that will not solve anything ...

It came to me with 12 years and a father who had already been type I for some years, so it was not difficult for me to understand what happened to me and how to act.Even so, I had my scares.

@12mas37 I know, but send eggs that the worst of the disease is due to a side effect of the medication itself.It's like curling the curl.

I am aware of the importance and usefulness of insulin, but we have more than 100 like that and have not developed something better about it.
If treatment were sure, the disease would be more bearable, like other autoimmune diseases such as some hypothyroidisms or psoriasis.

lowcarb said:
thank you very much @nigiri and everyone, you give me hope.
The problem is not only my son's diabetes, it is my emotional state.
The diabetes is taking it more or less well, the current "problem" the child is not stabilized with fixed insulin doses, but that it needs rapid variations almost every 2 weeks, in principle I believe that by environmental factors such as heat orMoisture, also the exercise has changed because there is no school and are things that bother me not being able to modify (although I manage to stabilize blood glucose in about 48 hours, it changes again in about 2 weeks).
The slow I have also had to raise it a half unit 3 times this summer, the summer began to 3 units at night and today it has 4.5 units ...

Diabetes is like that.I have been diagnosed for almost a year and I have not spent two equal weeks.At first it is very stressful, then you assume that adjusting insulin is normal in the management of this disease, so you adjust it and voila.
Do not ask yourself so many questions or obsessions with the idea of ​​a cure.You have to live up to date, be well today, enjoy what you can do today.Projecting to the future only serves to distress.
Play games that involve movement: the ball, the pool.Enjoy your company, don't look at her pity.Children are incredible, they are strong and resilient, they are full of joy and vitality.
He will be a happy child, for that he needs a serene father, he has enough with diabetes to also live with tension around.
You are a doctor, you have advantage over all of us to be able to handle the glycemia and treatment of your child.If we can, you will do better.
In this forum there are parents of diabetics, some have already reached adulthood.Go to your experience.I understand that it is a stick, it is tremendously unfair that a child has to live with this, it will not have a normal life, but it can have a good life.Hold on to that and enjoy your childhood, that you do not get the idea of ​​how short it is.

Thanks @ENSALADA.
In the race and with the experience in consultation (family medicine) I learned a lot about diabetes, but until you have no DM1 at home you don't know what it really means.It is not only about glycemic control, HC intake or insulin guidelines.The constancy, the willpower for not malcomer, the functioning of technology and among others and especially the emotional impact are things that I am learning and that you, unfortunately, you know better than me.I have not known the complete disease so far and I assume that you have much more knowledge and experience than me.

You have all contributed the same point of view;Living life a day and not waiting for an uncertain or utopian future, so that should be my behavior and I promise that I am going to try, in account that brings me and my son.It makes sense and should start practicing it because I have always been very pragmatic and I have not enjoyed the entire life for always following a goal.

It hurts to say it, but maybe even my son's disease changes me better.

lowcarb said:
thanks @ensalada.
In the race and with the experience in consultation (family medicine) I learned a lot about diabetes, but until you have no DM1 at home you don't know what it really means.It is not only about glycemic control, HC intake or insulin guidelines.The constancy, the willpower for not malcomer, the functioning of technology and among others and especially the emotional impact are things that I am learning and that you, unfortunately, you know better than me.I have not known the complete disease so far and I assume that you have much more knowledge and experience than me.

You have all contributed the same point of view;Living life a day and not waiting for an uncertain or utopian future, so that should be my behavior and I promise that I am going to try, in account that brings me and my son.It makes sense and should start practicing it because I have always been very pragmatic and I have not enjoyed the entire life for always following a goal.

It hurts to say it, but maybe even my son's disease changes me to better.

Of course.Your child is going to be happy, because children adapt to everything, you'll see.And you have to come up, for yourself and not to transmit anything negative.
In these cases you always suffer more parents than the child.And it's normal.But you'll see how everything is going well.

@Lowcarb, only one advice, from time to time you make a normal meal, from Burguer, Pizza, Ice Cream, of movie popcorn .. and you give him some jelly or something he likes when he can, you have to rehearse with theFast, in meals with dessert sometimes you have to click twice.
But that will help its acceptance a lot and avoid rebellion, which can come when everything becomes so rigid.Birthdays have to enjoy them as one more child, ice cream and some chuche, too.
The child's psychological part must take care of her, so that she is much more bearable and does not rebel in adolescence.

If @regina, we started to take the trick of the heavy meals, burgers, pitzzas, etc., at first we were frustrated to see how at 2 hours it was once again peaking +0.5 units of fast before the food, soUntil we understood that for these cases it is normal for a dissociated Bolus at 2 hours as long as it went from 240.
As a family doctor, I never touched the DM1 because it is an endocrinology disease.In terms of diabetes, we deal only with the DM2 and I was very good for my elders.But the DM1 only knew her of having studied her, she had no idea of ​​her psychological, dietary impact and use of rapid insulin.DM2 diabetics are controlled with oral pills and if they do not work, slow insulin begins that as you know is safer, it only uses the rapid in case of poor control with 3 oral antidiabetics and slow insulin.But, as I say again, they start and do it from endocrinology I suppose that because it is more dangerous.

Now, after 8 months of diagnosis I would be prepared for follow -up of DM1 patients, and although I still learn more things what affects me the most is the penalty that I feel for the misfortune that youHe has touched my child, his chronic complications (loss of vision, nephropathies, various vasculopathies, etc.), its psychological impact (mine and his in the future because now it seems to be able to take it with trueb> naturalness), also its social acceptance and that does not make any serious hypoglycemia in the future (with the sensors and the almost obsessive attention that we present does not seem very likely to happen, but one has the worst to fear when it comes to itsown son).

Something that I want to comment is that we have encouraged ourselves to have the 2nd son after much meditating and fear that we have another diabetic again, but we feel the need for the child to have the company and help a brother for the future.

@Lowcarb, do not think about complications that may never come, because treatments are getting better and are already achieved very good glycoslado.
Your child will do everything that is proposed, and medical advances are coming on time.
My daughter did not prevent her from making her life, studying away from home, working on what she likes and living ...
And your son, who starts now, will have it much easier
.Mucho encourage!

lowcarb said:
this morning, like many others, I have woke up again because my 5 -year -old son has slept all night to 230 according to the sensor.The deferred puncture has not done anything tonight (others if .....).I wanted to write to you this morning but I haven't had strength.

My 5 -year -old son is going to have type 1 diabetes of 8 months ago and I have not yet overcome it yet.

I take pills for depression and do not finish doing well.I sink into the misery of thinking that your life can be diminished in terms of quality early, its social acceptance can be influenced by the fucking disease (the parents of their friends do not accept him to sleep in their homes, the birthday partiesThey are a pain and I don't have fun anymore, I feel it sometimes also worried and tells me that he does not want to be diabetic .... here I have to hide to cry because I can't ...)

Can any charitable soul update progress?

Every 5-10 days I put in Google "Cura Diabetes 1" or "Bioartificial Pancreas" and in search tools I put 1 month.

I see news and articles that talk about stem cell therapy, genetic therapy, encapsulated cell transplant ... it seems viable and feasible as they tell, and they say that the cure can arrive in 5 or 10 years ....

Only with this I am also crying and it is hard for me to go out and make normal life.At work sometimes I also have to hide to cry.

I do not understand very well at all these advances of mother and genetic cells that can give my life and my son.

Can anyone give me some hope about these new advances, please?

Thank you!

Hello.

First I have to tell you that the progress in everything you talk is not very fast.Many news and a lot of propaganda, but in the clinical reality nothing.So your child will have to continue with insulins, infusion pumps and sensors.Sorry, there is no other.

But the real reason I am writing to you is to tell you that diabetes also discovered me at 5 years.Now I have almost 60. At first, insulin took her out of the pigs and my mother who was nurse injected me with a 0.7 mm needle and a 1 ml glass syringe that had to be boiled every time.The dose you guess by color reactive strips ... in urine !!!

Meanwhile, I got married 3 times, I had 2 children, I studied a career and I won my life very well, already waiting to be able to retire in not much more than 10 years.

Your child is going to get ahead as what I did.Actually, not, better.The methods of infusion of insulin and continuous measurement of blood glucose will continue to move forward and a day will come when you will wear a device and forget about the MG/DL, glycosilada and everything.And that day is not distant: your child will see it safe.

Much encouragement.

@lowcarb the first, you as an adult you must take this condition of your child calmly, serenity and maturity, diabetes has no cure and is a fact that we have to get the idea of ​​living with her.That it is overwhelming, painful and challenging, yes, but all diabetics accept it and live it with its pros and cons.
2as you do u.her drama others too, if people see that for you it is a drama they associate it with a great problem and that is why you do not have to sleep or parties for your child.
Do not engage in that there will be a cure, there are only investigations and have not reached anywhere, get used to and get used to the child, he will grow and will become more and more independent in terms of measurements andInsulin application.
Do not overwhelm, nothing will happen to you if you get on 200 more, just correct what it is more and try to control the diet more.
My recommendation with a lot of love and empathy for you and your baby is that you learn yoga and do it with the little one.It has helped me a lot to my struggle because the same thing happens to me as your child, I have resistance and thus eat low in Carbs I get up to 350 and 400, so strength, patience, breathe soft and deep and forward and forwardThat back or park the car.hugs

Sinking is not worth anything.There are children with diabetes who play soccer championships, who are going to study abroad, who lead a completely normal life. The first thing you should do is change attitude and way of seeing things.Because your child is not going to have a worse quality of life for diabetes ..., nor will it be discriminated against ... why don't you want friends that your child stays in their homes?Surely because they have overwhelmed the instructions you have given them things that can happen.And the birthdays ... on birthdays should eat like the rest of children who for something put insulin.

My advice is that you notice to algúna association and contact other parents with children and you will see how your point of view changes.

I also advise this Facebook group "The group of pirates with diabetes" thousands of adult members with disbetes and parents of children with diabetes.

And so.Courage, with diabetes and current technology is simpler.Your child should see you animated wanting to do things with him, he would even be great to go to some activity that diabetes associations with children and their parents do.

And the closest in Texnomogia end getting in operating rooms to the insulin pump with associated sensor is a change of life for better.These pumps are like an artificial pancreas that corrects the increases and minimizes or eliminates hypos.I have been with one and a hemoglobin between 5.8 and 6.

@Lowcarb In case it serves you, I give you another testimony so you can see that everything happens and you can make normal life with diabetes.My little sister has diabetes since the age of 3 (now has 35) and has passed difficult times such as adolescence with penalty controls, many hypoglycemia (several with loss of consciousness) and still without any complication right now.He always made normal life and that then there was no bolis, they were roads that needed to be cold, there were no sensors and gave you strips to do 2 or 3 weekly controls.
I debuted with 17 years (I have a pregnancy now 36) and my child is perfectly.Right now I have very good control because years ago I set out to learn and improve a pregnancy and got it.I learned what can be nutrition and disease and with that I have been with us below 5.5 and I still learn every day.And I do sports, fast, I travel ... I have studied, I have traveled alone by studies outside Spain, etc.I have also spent years of lack of control, they did not give me much material to measure myself and I was not very aware of what could happen to me and the glucose did not look at me much.Still I only have mild retinopathy that does not affect me to vision and I simply need annual reviews to control that it doesn't go to anymore.
The important thing is that you accept your situation as soon as possible from looking for a cure because that is unlikely and if it appears it will take to reach patients.He thinks that although something that works in a study appears, he needs years until his use is authorized in humans and then he is not covered and is very expensive and takes more years to arrive.It is not to discourage you, it is simply that you do not think about that as a solution to your current situation and take other measures that will help you.Learn from nutrition and that it is better to eat so that they affect the minimum of glucose, hydrates counting, insulin action, how sport influences, hormones, etc.The more information the easier to make adjustments.Without overwhelms but little by little you have to go learning and improving and you will transmit it to your child and take it well for most of the time.We all spend bad moments and diabetes sometimes overwhelms us but everything happens.
Your child is going to have a normal life and will do everything he wants, diabetes does not prevent you from being happy and leading a normal life, we simply have an added difficulty that healthy people do not have.

@pindakaas, @selena2022, @yessica_a thank you very much for your support, it seems to me that I am doing well to remember that the cure is a utopia that most likely that does not arrive, even having a lot of laboratory propaganda.
Although I notice relief every time I see a news about the cure, I think it is also a poison that damages my heart when I read in the news something that does not fit me or I find it rimbombante.

In the city where I live, Granollers, there are not many activities for diabetics, but when I find something and have the diagnosis of my most assumed little manure I will sign up.

Today I had a busy work morning, between patients and especially infinite bureaucForever and I have to accept it.Perhaps it is the best, lose this optimism that blinds me and dedicate myself to daily control and expect the child to also accept and know how to control without frustrations.

A hug to all, thank you very much for the help

Thank you, friend @"Cristóbal Cortés" for the good advice.
I put my hair on end every time they tell me about the beginnings of insulin, if little efficiency, boil the syringe, the fridge ... I saved life, yes, but it was even more angry than now.I imagine that his mother suffered a lot, it is very easy for me to empathize with her.

When he worked in hospital emergencies, I remember as if it were yesterday the attempted suicide with insulin of a young diabetic of about 25 years who was fed up with his illness (and other things) and the 4 insulin bolis he had in the fridge.He did not die, he took time, but I was marked, I remember that now it comes with more force.

In addition, the fact that it was me who took home the covid of the work day weeks before the debut, makes me guilty for having made a security error for which I was infected.

It is my daily struggle, the disease and my perception of the disease, I hope to clean myself soon.

A hug and thank you very much.