They do not treat us as we deserve.I abandon the diabetic patient before society.

After 4 years as type 1 diabetic (DM1) I have released the following conclusions based on my own personal experience:

Society: There is no diabetes information.They give you "my grandmother tips is not click, she takes a daily pill and goes very well", "The cinnamon is going well for the diabets, Tomatela".Come on, talk and give advice without even knowing that there are several types of diabetes.BRAVO!

Labor: I perform a fairly heavy job as a warehouse in a company that starts for Merca and ends in Dona.Well, despite informing them that I suffer from type 1 diabetes, I have to move with my own hands up to 7,000 kilos preparing the orders of the stores and they do not take me into account to reduce the workload by diabetes and it is requiredThe same as a healthy person.If I have to stop working a ratio to prick insulin or perform glucose controls, they do not take them into account and they continue to demand the same amount of productivity, we go, as if I stop every hour to perform a control, they do not care withsuch that I remove the productivity required by worker.Very bad bad!

Health: Has anyone stopped to think that a medicine as dangerous as insulin, it is we, the patients, who have to decide and prescribe how much dose of that medicine we have to administer before each meal?Then the nutritionist educators make me very funny.They give you the course of counting rations of carbohydrates and running.No sir, if you want us to take this seriously, that they quote us every week if necessary, that weigh us, give us the recipes to eat and indicate how many units per recipe we have to click, in the same way that a dietitian does itprivate that charges you (in my case) 30 euros a week.

On Monday I have a visit with my endocrine and I will tell you all this.I know that it will go from my 40 villages, the to yours.But do you know what?I will also happen.When I ask for the report with the rations of HC and the rapid insulin used I will tell you that I have stopped counting rations, if you want, to send me to the nutritionist but not to teach me to tell HC, no son, that is doneVery well, give me recipes, they weigh me, take care of me so that I take care of myself.If they do not take care of me or social security, why am I taking care of myself?

I disagree at the last point.Each person with diabetes is a world and the guidelines that come good to another are fatal and what is doing well doing the same exactly the next day does not work.Surely if they gave me your guideline, it would not serve me and vice versa, or any standard pattern.Hopefully diabetes were 1+1 = 2.That is why it is so important to learn to be self -sufficient in this disease, to know how to manage it for yourself because otherwise we would not spend it in the emergency room for not knowing changing ratios or how many insulin units put.One thing is that you give us quotes every thousand years, that I do not see normal or logical, but every week?What overwhelmed, with 20 years of diabetes that I carry on my back if I had to go every week I assure you that I would have bored and overwhelmed equally.That there are times that you need more help, but others that with the tools we have and that we learn we can carry good control without spending our lives in the consultation of the endocrine or educators.

It is not necessary to go in person every week.With current technology we could send our levels and they respond with changes in diet, exercise, etc.It is like Freestyle Psrches that you pay them and they do not subsidize legal age.

In work I wonder, do you know in your company that Soys Diabetics?Do you know how to act in case of suffering severe hiccups?Do they have glucagon?Do you have an intimate site where you click other than the WC?

narcissus said:
does not need to go in person every week.With current technology we could send our levels and they respond with changes in diet, exercise, etc.It's like freestyle psrches that you pay them and do not subsidize adult.

The problem is not only in Endocrine, it is throughout the public health system in general.A lot of patient for little medical staff.Today, unfortunately, it is unfeasible for a doctor to carry their questions + Adjust online guidelines.In any hospital health, specialty or emergencies are saturated, you just have to see the established time that head doctors have per patient or the number of patients that the same nurse carries.It is not because of doctors or do not treat us as we deserve, they do not put or have means to do so, not because they are "secondly patients."Today I thank you a team that has an endocrine + nurse specialized in diabetes + diabetes educator with a 24h emergency phone for any urgency to call them.With my first endocrine that I had I had no nurse or educator.

And about free freestyle, find out in your autonomous community because they are already beginning to finance the sensors at adults.

I only agree on the work issue.In society, each one already has their own problems, they do not have to know ours and in health a diabetic knows more about their insulin curves than the best doctor.

But in the work I do not give you the reason.Every day the works are harder and demanding and diabetic associations instead of fighting to soften or adjust our disease a bit, they just fight so that we can do even more hard work.

I hate going to the doctor every month and something for material to go to control every week.Today they only do it for patients with Syntron.
At work they demand the same as another person, but if we want them to treat us the same and give us the same opportunities, we will have to do the same as another partner.
Society that the most difficult to change, yesterday I almost stayed without eating, I asked for a sirloin with foie and came with a great sweet sauce, the equal salad, etc.
I am convinced that if I open an apt for diabetics, I linked, except Coca Cola Zero there is no other sugarless drink anywhere, except water.

ruthbia said:
I hate going to the doctor every month and something for material to go to control every week.Today they only do it for patients with Syntron.
At work they demand the same as another person, but if we want them to treat us the same and give us the same opportunities, we will have to do the same as another partner.
Society that the most difficult to change, yesterday I almost stayed without eating, I asked for a sirloin with foie and came with a great sweet sauce, the equal salad, etc.
I am convinced that if I open an apt for diabetics, I linked, except Coca Cola Zero there is no other sugarless drink anywhere, except water.

Hello good, I do not know where you will live, but where I go, they already have all the drinks without sugar, nestea, aquarius, fanta, cocacola, I have no problem to ask for refreshment light ... and with respect to the work, at least in myCompany if they know that I have diabetes for 24 years, they know how to act in case of a hiccsame or more than them.

Well, in Madrid, do not ask for a bar or restaurant a Zero Fanta or Tonica Zero because there is no.In supermarkets of course.
I have no job problem, my work is 100% compatible with diabetes.They all know but to date, I have not had any crisis.
I carry the same rhythm or more than before being diabetic

The works and diabetes will have everything.Bosses/companies more or less understanding with our ailment.In jobs that require physical effort, they should be more care with what they do because if there is an accident, the labor inspector arrives and puts them all finer than a glove, so in many companies not to say all, as you say in the interviewFrom HR you have diabetes, automatically discard your application.Sad right?

On what you comment on sodas 0, it is so.Despite having almost all more brands with zero sugar, many businesses do not sell them and it is difficult to find them.

It would also be appreciated that in the restaurant letters, you will tell you the HC that each dish has and thus adjust the better dose.

What if you can't do the same?We always talk that not all diabetes are the same, that each body is a world, etc.

Personally, since I have diabetes I am super frustrated because it has conditioned my life 100%.I work with children (in these very young moments) and my diabetes is a whirlwind, I do not know where it will come to me and it is quite overwhelming (and that in my work they are very understanding).However, I know that other people with diabetes would have absolutely any problem doing the same job as me.

I do not want to victimize, I hope, and I cross my fingers for it, that one day I can control my diabetes and be 100% or more, but I perfectly understand @narciso.I think that each case should be seen and put some type of solution, although only temporarily, and that it is not the same to have a more or less controlled diabetes to a diabetes that is an lack of control, not to mention the different types ofjobs.

On the other hand, in terms of nutrition issue, I would not go every week or coña, but I must say, in addition to diabetics, I am celiac, allergic to prophylaine (fruit and vegetables), nuts and anisakis, sinceI debuted nobody has bothered to teach me what I can eat or how I could eat it ... It is a quite poor factor in this sector.(And yes, my own doctors have told me "then take a salad ..." and I have hated them for it).

P.D.: I have to say, that life has become much easier for me thanks to continuous meters, but still still crazy.
P.P.D.: Reliating it seems that my life is pure garbage, but I just want to reflect the hardness of lack of control, even with lack of control you can live quite well !!!:)

I understand you perfectly nicaburbuja.About the jobs, one more note:

Have anyone here provided at work an intimate and healthy place where insulin can be administered?

If in your work they measure productivity daily, do you take into account the time we use to do controls, administer insulin or food in case of downturn?

If you get the high control above 200 or below 50, do they allow you to be without working until you recover without any problem?

In the last annual interview, my coordinator told me "You have a lost daily time, which you should optimize to achieve established production"

There I leave it friends with the forum.

I punctuate my job in front of everyone, I care about an "m" and I measure myself the same.There are 3 min in total, of course I work in an office but I can go to the toilet and do it there.
But in general, I have normalized.I click anywhere regardless of who is in front: restaurants, cinema, theater, group activities, etc.Let them get used to the rest.

At work they do not usually give me hypos, but if they give me, I take a sweet and continue.In some meeting I have left 10 min to recover if I am below 50, but it has happened to me only once at 4.5 years.

I have very controlled diabetes and use flash meter.

How lucky you are, below 50 at least a couple of times a week nobody takes them away.

Narcissus I have a very hard job in a ship with chemical baths at high temperatures and taking weight and with all the epis and sweating that you cannot or imagine
Long clothes, gloves, jacket masks ...... etc and there is no aisan condition, imagine 8h and only let me look at me once and change your task when the company believes it appropriate, you go from being running and effort to whichThe boss tells you now to change the task and there is 1hora working sitting a lack of control and if I notice that I am less than 40 and sweating to lose knowledge, the boss comes to you and I will end up over this and I am with the sugar like aRussian mountain and I go with 640 bomb.Looking at none.There are things that I agree with you but I don't share it with you more times.The best controllers are us and what they say 1+1 is not always.All the best

narcissus said:
What luck are you, I below 50 at least a couple of times a week do not take them away from me.

You will have to control more when those hypos pass you and anticipate eating something, or a candy.
If you know that in 3 hours you will not be able to control yourself and you are afraid of a hypo, commit something before, it is better to be in 200 mg/dl than below 60mg/dl.In the next meal you will correct it with insulin.

I do it in meetings of those that you know that the 3 hours called will be 5 or 6, and without eating anything ... before entering I like 4 cookies and I take jelly beans.All they give is water.

I have been diabetic for 29 years and I have never felt discriminated.

Society in general does not have to know about diabetes, those who have to know our disease and be responsible with it are ourselves and if perhaps the people we live with, but nothing more.People like to speak and give absurd advice, whether about diabetes or about anything else.

In the labor issue we should demand that they treat us as the rest and carrying well -controlled diabetes we can perform any work.Regarding the issue of looking at the glucose level in the middle of the day, I do not know what you take but I can of course do it in less than 2 minutes and if I am low I give the juice and fixed, that is, in less than 5 minutesI have solved it.

With the social security issue, there are terrible doctors but others very good, if you are not happy with your endocrine we are lucky that in this country we can change the specialist without problem so it is as simple as that.We do not have a perfect health system, there are many improveable things but as the world is, we can find a song in our teeth.

I personally refuse to be treated as someone special or as someone disabled, there are many diabetics who have been fighting for a long time to do not happen.

All the best.

nigiri said:
I am diabetic for 29 years and I have never felt discriminated.

I encourage everyone

I understand that there are frustrated people at certain times, without going any further I have passed a depression not long for different reasons and obviously having diabetes, does not help, but I do not think it is something that we have to consider special or inferior.Greetings @Aaron

I think the labor issue has focused badly.I asked about people who have to make a living doing physical views 8 hours a day and how the type 1 diabetes bears in their work.

If it is not your case (as it seems) do not bother you to answer since little or nothing you can help me.

P.S.Some jelly beans and load my 7,000 kilos daily without disheveling and if it gives me a hypo of 50 or less, zumito and in 5 minutes to return.How easy bulls look from the barrier.

The hypoglycemia can be avoided with good control, @narciso and 7000kg daily I say that a machine will load them, not you with your arms.
The issue is very well focused, you have titled it "They do not treat us as we deserve. I abandon the diabetic patient before society."And he understands that there are many people who, because they are diabetics, do not want them to treat us in a special way and that we do not feel socially abandoned.
On the other hand, this is a debate forum so you like it or not, if you raise a subject, people have the right to give an respectful way whether they are in favor of and not.
All the best.