The collection of the price of the tickets of Diabetes Experience Day that will be held in Barcelona on April 7, will be delivered this year to the Innovation Center for Children's Diabetes of the Sant Joan de Déu Hospital (CIDI), to finance a project that evaluatesThe commitment and adhesion of the patient with diabetes in the control and treatment of their disease.
Currently, the standard method to assess the control of diabetes lies in the evaluation of glyd hemoglobin (HBA1C) as well as in the analysis of capillary glucose auto-analysis and/or the interpretation of the readings of a continuous glucose monitor.
They are basic data to measure the effectiveness of treatments and suppose an indirect score of the risk of developing complications associated with diabetes, but these data are not able to weigh the load associated with the care of diabetes and the influence it has in the dayTo the day of the person who suffers it.
The results reported directly by the patient, better known by its acronym in English, pro -patient-reported outcomes- are defined by the FDA as any report of the state of a patient (or person) in relation to their health condition, their statemental or their experience linked to their health care and that come directly from the patient without interpretation of said response by a clinic or any other external person.The FDA clearly recognizes the importance of the pros, recommending that they be used to collect information from the perspective or knowledge of the patient.
There are different categories of pros that measure different spheres of the patient's experience: quality of life, self-strength, satisfaction with care, stress/distress, automanejo, load associated with treatment, family impact, coping of the disease, concern, burnout, anxiety, support, fear of hypoglycemia, adherence to treatment, behavior disorder, sleep, depression,….
The American Diabetes Association (ADA) defines as a priority the development of specific prospects in diabetes.The acquisition of this information directly provided by the patient implies an assessment of the patient's commitment and adhesion and facilitates shared decision -making in relation to diabetes care.
The Innovation Center for Children's Diabetes of the Sant Joan de Déu (CIDI) hospital develops a research program for the definition of Pros.This project currently has the support of two initiatives such as the US Exchange diabetes and the Sweet project, linked to the International Pediatric and Adolescent Diabetes Society.
With the donation of funds from the Experience Day diabetes, the purchase of tablets for the integration of information in the medical history and contribute to the development of methods that evaluate the patient's experience will be financed.These tablets will be delivered to patients and their relatives during the waiting time before visits, so that they can report information directly related to their health status that can help the diabetes team to evaluate their status in a global way andParticipate in shared decision -making in relation to the treatment and management of your diabetes.
