My 22 -month -old son with type 1 diabetes, I'm desperate !!!
12/21/2022 7:05 a.m.
Good morning!
It turns out that 2 days ago we had visit with the endocrine pediatrician of my son with DT1 (22 months) which has been bomb since November (Tandem Slimx2) and debuted in September, and we are going fatal.There is no way to control it.
Even and putting what the bomb marks the child stays well for a while and then rises again without having given anything to eat ... It is a without lively.
In addition to all this I explained to the doctor that it does not last 2 days, instead of 3 long as they told us, and that the bomb does not warn us of any failure, when taking out the cannula everything is perfect, there are barely bubbles, it continues to come outInsulin perfectly ... Anyway, everything seems good, except because it goes from being well to eat one day and planted in values that scare.
To all this they tell us that it is very high and you have to put more insulin, but it remains the same !!
In my opinion, insulin ceases to take effect because it has no logical explanation (Humalog Junior) or we must modify basal ratios that told us that these changes were made!Right now the night has passed in 200 and something when it is usually 100 and little ... we have corrected 4 times with what the bomb marks and nothing ... to 219 right now.
It is crazy and within 1 month they do not visit us again.
I am about to remove the pump and return to the pen.
Let's see if someone can shed some light :(
Thank you so much.
12/21/2022 7:05 a.m.
@Mothermom, have you looked at what the glycosilada marks in the sensor?Maybe it's not as bad as you think.In such young children it is difficult to find the dose, but they are increasing as they grow. I think they should teach you when to raise the basal.
12/21/2022 9:21 a.m.
Hija de 35 años , diabética desde los 5. Glico: normalmente de 6 , pero 6,7 la última ( 6,2 marcaba el Free)
Fiasp: 4- 4- 3 Toujeo: 20
@Regina, I don't know how the glycosilada looks like.I have heard of it but they have not explained what it is even how to look at it.I also think they should teach us to climb the basal, or at least call me and tell me what I should put.Thank you.
12/21/2022 9:24 a.m.
Mothermom said:
Good morning!It turns out that 2 days ago we had visit with the endocrine pediatrician of my son with DT1 (22 months) which has been bomb since November (Tandem Slimx2) and debuted in September, and we are going fatal.There is no way to control it.
Even and putting what the bomb marks the child stays well for a while and then rises again without having given anything to eat ... It is a without lively.
In addition to all this I explained to the doctor that it does not last 2 days, instead of 3 long as they told us, and that the bomb does not warn us of any failure, when taking out the cannula everything is perfect, there are barely bubbles, it continues to come outInsulin perfectly ... Anyway, everything seems good, except because it goes from being well to eat one day and planted in values that scare.
To all this they tell us that it is very high and you have to put more insulin, but it remains the same !!
In my opinion, insulin ceases to take effect because it has no logical explanation (Humalog Junior) or we must modify basal ratios that told us that these changes were made!Right now the night has passed in 200 and something when it is usually 100 and little ... we have corrected 4 times with what the bomb marks and nothing ... to 219 right now.
It is crazy and within 1 month they do not visit us again.
I am about to remove the pump and return to the pen.
Let's see if someone can shed some light :(
Thank you so much.
In Asturias - Gijón, on the one hand is the endocrine that you have an appointment once or twice and there is also a diabetes nursing team.This team helps you teach and in your case they can help you manage this situation.
Ask in your hospital and advise you.
12/21/2022 9:56 a.m.
Db1 desde Diciembre 2007.
Fiasp y Tresiba.
FreeStyle Libre 2
mothermom said:
@regina, I don't know how the glycosada looks.I have heard of it but they have not explained what it is even how to look at it.I also think they should teach us to climb the basal, or at least call me and tell me what I should put.Thank you.
In the three rayitas from above to the left the menu opens and is A1C estimated.
12/21/2022 9:59 a.m.
DM 2 con páncreas agotado desde diciembre 2020. 51 años entonces.
HG diciembre 2020: 15.9. Última HG: julio 2024 5.8
Abasaglar 9 unidades. Metformina, 1000/0/1000. Humalog junior: 2 unid en desayuno y luego en función de lo que coma.
Another here that has spent a night in 200.
Starting with the pump requires time.From its own experience, it is obviously very tiny and that makes it a little more difficult to control.Being an adult, I've been just a month with the bomb and I would say that I am almost worse than when I had feathers.You have to give a certain margin so that the bomb algorithms learn from it.
Much encouragement and before any questions do not hesitate to consult it in the hospital
12/21/2022 11:13 a.m.
Varon de 28 años con diabetes tipo 1 desde 2015. Minimed 780G y Guardian 4 con Humalog
@Prother Well, what's what we had been painted too well, and we were already somewhat reluctant, but we will give him time because avoiding the punctures is already a lot.Hopefully everything looks better.Much encouragement for you too!
12/21/2022 1:12 p.m.
Much encouragement to both.I know the people who use a bomb are delighted, although I suppose it will take an adaptation time ...
12/21/2022 2:39 p.m.
DM 2 con páncreas agotado desde diciembre 2020. 51 años entonces.
HG diciembre 2020: 15.9. Última HG: julio 2024 5.8
Abasaglar 9 unidades. Metformina, 1000/0/1000. Humalog junior: 2 unid en desayuno y luego en función de lo que coma.
@Regina In the end I found the glycosilada you said ... 8.4 puts.This is how I see.Let's see if we get that down.
12/21/2022 5:42 p.m.
I would also point out that it is not just what he eats;If you are nervous, something hurts, etc., you can also raise glucose.You will know that this is not 2+2 = 4 and that there are many factors that influence.The same is still strange and has to get used to it mentally, not just her pancreas.Give him time;)
Controlling a diabetes in such a small child is difficult but do not overwhelm, you are doing well.Much encouragement !!
12/21/2022 9:58 p.m.
Diabetes tipo 1 desde los 28. Cuando quedo con mis amig@s siempre llego tarde, en la diabetes no iba a ser diferente 😅 También tengo hipotiroidismo, asma y alergias varias... soy una pupas.
Levemir y Fiasp
Freestyle Libre 2
Última HbA1c: 6 (Marzo 2023)
@Mothermom I agree with tam, little by little .... don't have to be overwhelmed (I know it is easy to say with a baby) but many things influence: the nerves, if it gets bad, ... I'm going to giveA point of positivism to ours: my educators are tired of telling me that today it is very difficult to give complications, that they try the sensors also make peaks of more than 200 (which happens that when we have never been healthyWe have verified it), that today's insulins are very good and make better than those that had formerly, that many controls are made throughout the year and there is medication to reverse "possible", who have patients who carry more50 years of diabetes, which are already old and have no problem ...
That what we cannot do is do as we are not sick and if we see that we are high, not correct (they also say they have patients of those), but that if we are involved in our disease nothing has to happen ....That it is normal to move from 200 at meals, but the important thing is to be at 2h below 180 or in your case rectify ....
With all this I want to reassure you, having a bomb is having the diabetes ferry (they told me on my last visit), you just have to adapt to it, but surely your child will have a long, intense and happy very young life ....:*
12/22/2022 12:10 p.m.
@Cassie a thousand thanks for the spirits!You are right ... I know that my way of being an anxious I have to dominate it, just like the diabetes curves of my little one, because we have the tools .... again thank you for your comment!Happy parties to all.
12/22/2022 12:17 p.m.
@Mothermom I am a diabetic for more than 50 years and now I have a bomb with a closed loop sensor.As they tell you in some answers, it is practically impossible not to go from 200 mg/dl if you eat a lot, do not worry.What you have to get is that it goes down at two hours or so and that it is not kept high in periods without intake.Apart from the regulation of the "Bolus" (the insulin that you are injected with food), the pumps also regulates the "background" or "basal" insulin.From what you tell, it gives me the impression that you have it low and that your endocrine do not know how to handle it very well.I would tell him, they will upload the basal and if you have any problem, in public health you also have the right to change specialist.Find out in your city what are the good children's endocrine, select one or two, and ask you to change you.
12/25/2022 5:34 p.m.
@"Cristóbal Cortés" true.The truth is that it needs little insulin.This week we have seen that for whatever it is to the cannula, the entire insulin was not entering and it seemed that a truck was needed.Luckily now with half of what the bomb marks, it remains quite in rank all day.Of course .. When removing the cannula the other day we saw white remains inside, that we do not know if it is the insulin itself or some rest of the skin or fat, no idea ... perhaps it was what I was doing that it would give problems.
12/25/2022 6:58 p.m.