Disappointment with school

alex's profile photo   05/30/2014 3:07 p.m.

  
alex
06/13/2014 12:07 p.m.

Hello Enma.Thanks for writing.having, we very respect the form of each one to see and live life, I think you are not going to get angry and you will better understand that those who do not have or live this disease what we are going to tell. This is already sick, in caseIt is complicated alone, if we add it to young children and if in turn more things appear, we agree on the will of the teachers, but we believe that they have made a career, to try that tomorrow theyBe something in life, not to meet our children's health needs, it is as if a painter is dedicated to operating the people of the heart ... There is a lot of misinformation we have to make people know about this.When our son came out of Hopital with something more than one year, after being in a coma, with 533 of blood sugar, they recommended us to go to the Xunta to ask for the disabilities and there they told us that what he had was like a cold,With diet and insulin was already fixed.If it is because of the cuts, where to get out, it is not necessary€ 425 But well we have to continue fighting from Coruña Happy day and I better night: x: x: x: x: x

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Papajesus1
06/13/2014 3:54 p.m.

My child only has been in school for a month.It will turn 5 in August, just as we refuse to take it without attention.In the concerted schools they gave us a door, they did not want problems and in the public much better, the teacher and all the school excellent but we want monitor.We have requested it for next year, I will tell you.

Padre de Jesús. Bomba insulina y dexcom g4 share. Debut con 18 meses....ya con 7 añitos...Hemo entorno a 7....y mucha lucha diaria.....ya sabéis..poco dormir y bastantes miedos....pero mi niño es feliz luego yo también.

  
alex
06/13/2014 4:33 p.m.

Hi Papajesus1, because instead in school where the child has to go after seeing the medical reports they are tremendously scared, and they are not for the work of getting it easy, I do not think that they have very funny to have the child there, in fact theTutor says that she will do nothing because she does not understand this, I mean that she could not carry out the adaptation because of each other, monitor no, health personnel, who effectively respond to any unforeseen child.Thanks for your comment.all the best, :-* :-* :-*.Good morning and better night

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Papajesus1
06/13/2014 5:11 p.m.

Very good about the night, we control at 1 and 3, two lucky controls, I hope the night is acceptable.... I no longer ask for good.In my case the teachers do what they can but it is my parents (grandparents) who do the controls but give us total access and take the child to 1.00 to be at home at 1.30.They do what they can and try to learn, they know how to put glucagon (if necessary) and have instructions for descent.All the school, including director have supported asking for monitor.... we will see with the fucking cuts .... That is our battle next year.This month has been to adapt it and what socialize.It shows that he has not been with children and it costs him although he is happy and that is a lot for me.

Padre de Jesús. Bomba insulina y dexcom g4 share. Debut con 18 meses....ya con 7 añitos...Hemo entorno a 7....y mucha lucha diaria.....ya sabéis..poco dormir y bastantes miedos....pero mi niño es feliz luego yo también.

  
alex
06/14/2014 10:20 a.m.

The nights depend on many things, so we have to go on the fly, as in everything we have to adapt the whole family to the needs of the child, we cannot make plans.The grandparents who are closer, have already taken, such a scare, that it costs him a lot to keep him.The excuse of the cuts, not to do what is really needed, we every time we love that the child went to school and had to return with him home, we told him that the teacher had become ill, as many timesHe was, he would like to go to school, how his sister goes, but it's what you say, he will cost him even if he will be happy ... we hope, in school he does not want to complicate his life. But well we have just under 2 less than 2months to follow the battle. Thank you for your time. I greet everyone: x:-*: x:-* (*) Good and better night to all

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pabloj2000
06/14/2014 5:40 p.m.

Hello, the disabilities and the xunta ... marine fabric.I carry in these last months 2 applications to review the disabilities (of course far from 33%), since as soon as my application comes to me, they denie it by claiming laws of all kinds or asking for roles ... the last thing has already been anotherApplication this time urgently for labor issues, and come on, as if it were not urgent, I am already out of my company after many years (and becomes part of the national company, you know) and everything for not having the dagger disability (workIn an international company, which have made an ERE and have been charged to all except the trade unionists -they spend worse than the political caste, the sector in which I am is technological, but some was the one who made the boxes -imaginaos- andHe was doing work ... Come on, occupying positions and pushing others) and what hurts me the most, those who have 33% of disability, which would not happen if it was not because a partner is diabetic like me, much better controlledAnd without the need to pay 300 euros a month of the Dexcom, and as he had it years ago ... he has stayed).Anyway ... that with those of the Xunta ... with the church we have encountered ... at another time it was not so, now ... Forget, no, no, no, and no ...Even, in my case, they serve me, I go to the court, we talk, and then denied it ... no, they don't want to go.

A disaster ... and as a gift they give us the needles insauce that you surely know, so we do not have to pinch to know if this is a nightmare.

He continues to press the Xunta, but ... complicated, shamefully complicated.

greetings

PUBLIRREPORTAJES NO¡¡¡

  
alex
06/15/2014 9:44 a.m.

Huy .... Pabloj2000 first good morning, we understand you perfectly, the Xunta for its vary 10% and that had no degree of dependence with one year old and using insulin, we denounce them before the court and gave us the degree24 remaining at the door for not having hospital income more than 2 a year and more than 48 hours in each and yet, when you requested revision, they continued with their 10%, the worst of all this, is that those that those that those thatThey do the valuations, they are family doctors, neither forensics nor specialists, nor anything .... Well, the unions equals them, both ride each other, but for them. We know here of a company that touched the hue so much.... With the happy agreements, that the boss began to make people, but the unions are there .... these use the trbajadores for their own venefice that you are going to wait for them when they recive subsections of the State and haveA salary better than that of the coupon of the eleven, ha ha ha remexed me to everything that comes out in the press that good life lead .... Well, the needles here wanted to give them from number 8 and cost us a lot ...Wakes, visits ... and in the end the pediatrician through a brief consiquio that every month give us a box of number 04. We have no other than to continue fighting with them, as you say you is shameful, that afterThat sew us with taxes, fines, sanctions, surcharges ..... we cannot ask for the most necessary.Thanks for your comment, we will be in contact,:-*:-*:-*

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pabloj2000
06/15/2014 10:01 a.m.

Hello, then give it hard, indeed currently it is a disaster about the XuntDownload for more than 1 year, others take trade hours on Fridays and Mondays, chance, eh?Well nothing, to be "passive", instead of charging and spending on my dexcom, quote the SS and pay me at least my medications (insulins, strips, etc ...), come on, not being a load, simply a 0, they prefer to pay me unemployment and medicines, because perfect, all expenses for them-we

I complain about mine, of course, but first of all, I put the interests of any child (I am a father) as your case, I accept that they do not want to give me disability (although I consider that I have it and fat), I acceptThat they do not want to pay me a dexcom, I even accept that they give me the kk of needles (I buy my bd from my pocket) InsUPen ... All this, because "drink", but to a child, I'm sorry, they are unpresentable,The disability deserves (with the facilities that this could imply), he deserves to be paid a Dexcom, and deserves BD needles.

As you can see that none of those who work there is diabetic or have diabetic children ...

Do everything you can, because they deserve it, that if, as you say, collect, well that everything is charged and without grinding.

Courage and luck
Greetings

PUBLIRREPORTAJES NO¡¡¡

  
alex
06/15/2014 8:26 p.m.

Hello Pabloj2000, what you tell the truth is not surprising, neither of the Xunta nor the unions, which I assure you that more things happen, surely if more than 1 spoke we would throw ourselves from the hairs, if not anything else.We do not want us to give us more than anyone, nor that they take it to another, to favor our child, but what is clear, that there are priorities and in this wonderful country we throw the house through the window in stupidities and there is noFor what is necessary. We do not like to say the liabilities except to be a load, a load will be all that suspicious vulted that charges a paste, for charging or doing nothing in this society, I do not believe that any we are included in thisGroup, it may not be easy to lift a country, with a lot of problems but it is not seen that they are very interestedA lot of better because it has us to talk about the subject and in the end it is as if you would tell a science fiction movie, of course, who are people who have no idea of ​​all this and do not come back to anyone because you feel fatal ....... We will continue working not only for ours, as you say, because they deserve it, greeting everyone, grlascias,
HAPPY DAY AND BETTER NIGHT,:-*:-*:-* 8-} 8-} 8-}

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alex
11/03/2014 9:33 a.m.

Hello everyone, for a while I was not with you, I will tell you how things this is here, as summary as possible ..., Alex goes to school but goes home again, picks up files once a weekTo do at home, decisive thus between school and us to meet Alex's needs as long as this is not fixed, the minors of the Coruña archive the file that I raise education by school absenteeism and deprotion of the minor against us for understanding that theParents or the family, have abandoned the child, which is a problem of administrative education and it is theirs to give the solution to this problem, in Parliament to all this they continue working so that the Xunta of explanations of this stupid situation, which whichThey continue to say, that they have, the open file, and that they will not give more solutions, but that solutions I do not want solutions. That the one they say in the medical reports of Sergas in the school where it is enrolled by education, soSimple and clear as that, if he has no more return, but hey, they continue with their roll ...., in a plenary session of the City Council all the political parties except the PP and another, voted in favor so that the mayor and the councilorthat carries social matters, Benestar, Education, Health and is a lieutenant mayor, who put all the means that the City Council has at our disposal, and that ultimate the Xunta to put an ATS in the CEIP Portofaro School Center, although the councilor, saysThat it is not within its competence, it will be because all are from the PP, Health sends a brief to the valid do povCole saying that the child is insecious and crosses from the phone a doctor entered the child's file and as long as the ambulnce does not arrive, he will tell him what needs to be done, he only includes that, neither test nor treatments, nor meals .....doctors, who is going to repose the child in the teaching hours, for his control and if something happens, where to give account. We are more or less the thing like this .... the good thing is that, throughout this processStupid Hinumano and I don't know how to qualify it more by the Xunt

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nina45
11/04/2014 7:12 p.m.

A lot of strength because if you have something, it is a lot of courage and all the reason.I wish you the best because you really are an exemplary family.Gallanes-Catalan kisses and hugs.Nina45

Diabetica tipo II desde Diciembre de 2012 pero descendiente de diabéticos desde nacimiento
Medicacion: metformina de 850 gr mañana, mediodia y noche.
Ultima glicosila 6
Lema: "If you want a positive life, spent time with positive people!"

  
alex
11/06/2014 12:43 p.m.

Well, I am still, pesadisima with the content of Fer's publication on the other child who do not put health personnel in the school, look it is ridiculous, absurd, inharmented, little sensitive ........ that parentsLet us have to do all these things for our children this cannot continue like this, these things need an urgent change, you will see in the morning we went to school to take the records we make at home, then we had meeting with social issues to make a reportFor the file that education, it still has open, but I don't know what they are going to do with that, for now everything remains the same, but we are not standing, we carry all the week of meetings up and down .....Waiting for the moment to tell us, you can leave the child in the school because there is an ATS to control their illness, no, Nina45, no, we only think that while many are approved of their position to do what they want, like throwing money into useless things for the town or putting their hands in the box, having these needs, that we cannot be liabilities or look the other way, we are only asking for something so necessary, so basic, for Alex that long wingYou will have to do the rest of Spain, from here I give my support to this family and to all those who want this situation to be changed, totally unfair and without anyone doing anything, and I will not enter the associations, because I would warm up another oneOnce and well I love my stomach, to mistreat it in this way, because of the useless people who govern us, who do not get angry with me those of the forum, because of the useless, in the Spanish dictionary, it does not appear as an insult, ... Thank you all, happy day and better night

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Sarita83
11/17/2014 3:07 p.m.

Alex, I know that now you see everything very black, but let me tell you that asking for a disability for a diabetes seems to me an insult to all type I diabetics of this country.I may seem hard, but I have never considered a disabled one, on the contrary I have come forward without problems and with a very complicated life for causes outside my diabetes.I have never needed a nurse, I have never needed special treatment and I am proud of it.Today I have an equally normal life as a person without diabetes.I shared school with real disabled children and I consider that there is an abyss that separates these cases and I consider that they deserve respect.

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alex
11/20/2014 12:35 p.m.

Sarita83 ball

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alex
11/20/2014 2:50 p.m.

Hello everyone, the first thing I apologize for the above is that I am writing from my mobile ... well some things.Having sarita83 I respect the opinion of others. My son has more diseases than diabetes. It has a disability given by a judge has medical reports that need an ATS. I repeat him. Medical reports that need an ATS in the school ...I do not believe that because my son has that need, he is insulting the diabetics nor are we talking about special treatment but of something so necessary in his life. Abure that you have within the disease thing that my son.It does not have.

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alex
11/20/2014 3:05 p.m.

I will continue to fight first so that my king of the house is the best attended away from home and when I get it I will continue throwing so that all the kings and queens of all the houses that need it have the same as mine even if they find people ....... let it look bad.

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pabloj2000
11/21/2014 7:57 a.m.

Hi Sarita83, it is not an insult to all type I diabetics, for me it is not, it is a well-deserved disability, because it limits you and much, for me an insult, sometimes, are those hyper-optimistic messages (let's see,That we are many diabetics, I had them many years ago, "being diabetic is a blessing, you are going to take care and live much better than anyone"), I do not say neither one thing nor another, nor optimism, nor pessimism (butThe reality is closer to pessimism, laughs apart, that people confuse), simply, realism, and that realism is different for each person.And here I also say that when we put our children (I am also a father) we are totally impartial ... Of course we want the best, that they are happy, that they are independent, that they are healthy, that ... but with our children, we blind ourselves, they are the most handsome even if they have an eye looking at Barcelona and another to Coruña, when they go to the bathIt is laughing so that they see it does not mean that you are suffering from behind and that is much (and that laugh for them, is well put, to encourage them ... but others who know what there is, sincerely, no, to me, to meIt doesn't sneak me, and it's a saying).Prudence, it is what is needed.And I fully share what many parents demand, because they are also in their right, and after each one educates his own with the principles and ways of life that he considers appropriate (demanding, left, religious, atheist ... all very muchdebatable, all, such as optimism or pessimism in diabetes).

That this does not mean that there are people like Oscar Pistorius than without legs, it runs more than any healthWe will do it.Type I diabetes has many limitations in our life, perhaps that your diabets is different from that of others, I do not doubt it, but we should not generalize (neither in one nor another sense).It limits you many things, it does not let you do many others (yes, it does not leave you ... maybe it leaves you, but it may not when you want, or at the time you want.

Returning to the case ... I encourage you to continue fighting.Suggestion ... Have you raised a Dexcom?It is continuous measurement, the child could take advantage of at school and in life outside it, it really is to interpret some alarms and little more (which teachers can also interpret it, moreover, the receiver can have a teacher and does not doIt is missing that of mathematics :), with seeing the values ​​or looking at it when it whistles, you know that everything is fine.

I think that could be a good solution for control, or at least, part of it.In your case it would be more than justified to pay it.

By the way, I have seen you in the newspaper a few weeks ago.

greetings

PUBLIRREPORTAJES NO¡¡¡

  
alex
11/21/2014 7:09 p.m.

Hello Pabloj2000 I just read your publication and is very successful and
Very interesting.And conceived in almost everything with you. For me my 2 children are the most beautiful although for others they are ... and if you have a moment of those that will give you the downturn there appears as by magic the girl or theLittle with his crily follies and goodbye downturn ... do not tell me that it is not to leave the soul for them ..... Well dexcon we have to inform ourselves ... well it does not have where weYou wear but I don't have the last time ..... kisses for everyone. Feliz day and better night.

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